Awareness

With only a handful of UK children diagnosed with TANGO2 out of potentially thousands living with it worldwide, we need to promote clinical awareness so children can be recognized earlier and reduce the risk of metabolic crisis.

We want to work with clinical teams to enable learning opportunities and education for any clinician who may be involved in treating or working with affected individuals.  We aim to provide teaching, resources, and links between teams to better understand and protect our TANGO2 community. If you are interested in receiving education please contact us.

Support

The diagnosis of TANGO2 can come out of the blue, alongside a serious hospital admission or after years of unexplained symptoms. 

Families are often left isolated after such a diagnosis with minimal clinical information and no easily accessible support networks. 

Tango2UK wants every family receiving a diagnosis to feel supported and have access to information and advice about their new diagnosis.  If you are a new diagnosis please do contact us and we shall aim to respond within 24 hours.

Research

With any rare disease research is key to understanding and therefore helping affected individuals.  Our end goal of course is find a cure for TANGO2 deficiency disorder and reduce the impact it has on children/ adults and their families. 

We aim to fundraise for grants which will enable research into TANGO2 genetics/ protein and effects of this condition. If you can support TANGO2 please click on our donate button or if you would like to contact us regarding grants or alternative funding or research opportunities, please contact us.