Welcome
We are a small UK based charity looking to work with individuals and families affected by TANGO2 deficiency disorder and support clinicians who have patients with it.
TANGO2 is a rare genetic metabolic disorder affecting children from birth and causing long term health problems.
Our Mission
01. Awareness
With only a handful of UK children diagnosed with TANGO2 out of potentially thousands living with it worldwide, we need to promote clinical awareness so children can be recognized earlier and reduce the risk of metabolic crisis…
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02. Support
The diagnosis of TANGO2 can come out of the blue, alongside a serious hospital admission or after years of unexplained symptoms. Families are often left isolated after such a diagnosis with minimal clinical information…
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03. Research
With any rare disease research is key to understanding and therefore helping affected individuals. Our end goal of course is find a cure for TANGO2 deficiency disorder and reduce the impact it has on children/ adults…
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TANGO2UK Supports Global Research Through Innovation Fund
TANGO2UK is proud to have contributed $15,000 to the TANGO2 Research Foundation Innovation Fund—a critical [...]
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Patient Participation Group (PPG): Embedding Lived Experience at the Heart of Our Work
In 2025, TANGO2UK established its Patient Participation Group (PPG)—a significant step forward in ensuring that [...]
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Engaging with the BPNA Annual Conference 2026
In 2026, TANGO2UK engaged with the British Paediatric Neurology Association (BPNA) Annual Conference, a key [...]
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Paediatric Neurology Conference in Glasgow
We are delighted to recognise the outstanding contribution of Dr Seenivasan, whose recent work has [...]
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Tango2UK’s first Away weekend at Whitemoor Lakes
Our recent Whitemoor Lakes Family Weekend provided a truly special opportunity for families to come [...]
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Tango2UK is now live on social media
You can find us and keep in touch on Facebook and LinkedIn. Please follow and [...]
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Donate Now
Please consider supporting TANGO2 UK with a donation. Your money supports research, promoting awareness of TANGO2 deficiency disorder and enables the TANGO2 community to feel supported and less alone.