Welcome
We are a small UK based charity looking to work with individuals and families affected by TANGO2 deficiency disorder and support clinicians who have patients with it.
TANGO2 is a rare genetic metabolic disorder affecting children from birth and causing long term health problems.
Our Mission
01. Awareness
With only a handful of UK children diagnosed with TANGO2 out of potentially thousands living with it worldwide, we need to promote clinical awareness so children can be recognized earlier and reduce the risk of metabolic crisis…
Read More
02. Support
The diagnosis of TANGO2 can come out of the blue, alongside a serious hospital admission or after years of unexplained symptoms. Families are often left isolated after such a diagnosis with minimal clinical information…
Read More
03. Research
With any rare disease research is key to understanding and therefore helping affected individuals. Our end goal of course is find a cure for TANGO2 deficiency disorder and reduce the impact it has on children/ adults…
Read MoreLatest news
Tango2UK Attends the 2026 TANGO2 Family Conference in the USA
Tango2UK was proud to be represented at the 2026 TANGO2 Family Conference, hosted by the TANGO2 [...]
Read more
T2RF TDD Research Pathways Grant
We are excited to announce the TDD Research Pathways Grant, a new funding opportunity designed to [...]
Read more
Tango2UK Summer Sounds Raffle Raises an Incredible £1,590!
We are thrilled to share the fantastic success of our Tango2UK Summer Sounds Raffle, which raised [...]
Read more
Summer Sounds Party Raises £2,000 for Tango2UK
Volunteers from Tango2 celebrated a hugely successful Summer Sounds Party, raising an incredible £2,000 to [...]
Read more
The Tango2 Community to Benefit from Counselling Support Thanks to Crane Fund for Widows and Children
We are incredibly grateful to announce that we have received a generous grant of £3,500 from [...]
Read more
TANGO2UK Supports Global Research Through Innovation Fund
TANGO2UK is proud to have contributed $15,000 to the TANGO2 Research Foundation Innovation Fund—a critical [...]
Read more
Donate Now
Please consider supporting TANGO2 UK with a donation. Your money supports research, promoting awareness of TANGO2 deficiency disorder and enables the TANGO2 community to feel supported and less alone.