Useful Links

TANGO2 Research Foundation

This U.S.-based charity is a global leader in supporting TANGO2 families, advancing research, and providing resources worldwide. Visit www.tango2research.org to share your story, join research initiatives, access a wide range of resources, and connect with a supportive community.


CoRDS

Consider registering with CoRDS (Foundation Coordination of Rare Diseases at Sanford) to enable accurate genetic information to be held worldwide. PATIENT REGISTRY – TANGO2 Research Foundation


Sebbys gift

https://www.sebbysgifts.co.uk/


Disability Living Allowance

Disability Living Allowance (DLA) for children: How to claim – GOV.UK (www.gov.uk)

Disability Living Allowance (DLA) for adults: Overview – GOV.UK (www.gov.uk)


Blue Badge Applications

Apply for or renew a Blue Badge – GOV.UK (www.gov.uk)


Nursery and School Support

via our schools SENCo and your council local offer- search “County Local Offer” or via this website

Children with special educational needs and disabilities (SEND): Extra help – GOV.UK (www.gov.uk)

 

“A hero is an ordinary individual who finds the strength to persevere and endure despite overwhelming obstacles”

Christopher Reeve

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