TANGO2 Research Foundation
This U.S.-based charity is a global leader in supporting TANGO2 families, advancing research, and providing resources worldwide. Visit www.tango2research.org to share your story, join research initiatives, access a wide range of resources, and connect with a supportive community.
CoRDS
Consider registering with CoRDS (Foundation Coordination of Rare Diseases at Sanford) to enable accurate genetic information to be held worldwide. PATIENT REGISTRY – TANGO2 Research Foundation
Sebbys gift
https://www.sebbysgifts.co.uk/
Disability Living Allowance
Disability Living Allowance (DLA) for children: How to claim – GOV.UK (www.gov.uk)
Disability Living Allowance (DLA) for adults: Overview – GOV.UK (www.gov.uk)
Blue Badge Applications
Apply for or renew a Blue Badge – GOV.UK (www.gov.uk)
Nursery and School Support
via our schools SENCo and your council local offer- search “County Local Offer” or via this website
Children with special educational needs and disabilities (SEND): Extra help – GOV.UK (www.gov.uk)
“A hero is an ordinary individual who finds the strength to persevere and endure despite overwhelming obstacles”
Christopher Reeve