Tango2UK was proud to be represented at the 2026 TANGO2 Family Conference, hosted by the TANGO2 Research Foundation in Orlando, Florida. The biennial conference brought together families, clinicians, researchers and international partners from across the world to share the latest developments in TANGO2 research, clinical care and patient support. Representing Tango2UK were Dr Abinaya Seenivasan and 2 UK […]
We are excited to announce the TDD Research Pathways Grant, a new funding opportunity designed to support the next generation of researchers advancing TANGO2 research. Are you an early-career researcher (e.g., MD, PhD) or trainee (undergraduate, graduate, or medical student) looking for funding to support TANGO2 research? If so, we encourage you to apply for a T2RF […]
We are thrilled to share the fantastic success of our Tango2UK Summer Sounds Raffle, which raised an incredible £1,590 to support families living with TANGO2 deficiency. The raffle offered one lucky winner the chance to experience an unforgettable Olivia Rodrigo VIP concert experience at The O2 Arena. Following a random draw, we were delighted to congratulate our winner and […]
Volunteers from Tango2 celebrated a hugely successful Summer Sounds Party, raising an incredible £2,000 to support the charity’s ongoing work. The event brought together supporters, local residents, and community members for an evening filled with music, entertainment, and fundraising. Guests enjoyed a fantastic live performance from local band Token Truth, whose energetic set helped create […]
We are incredibly grateful to announce that we have received a generous grant of £3,500 from the Crane Fund for Widows and Children to fund counselling sessions through RareMinds for families affected by Tango2. This funding will allow families within our community to access professional counselling support, helping them navigate the emotional and mental health challenges that can […]
TANGO2UK is proud to have contributed $15,000 to the TANGO2 Research Foundation Innovation Fund—a critical global funding mechanism accelerating progress in TANGO2 research. The Innovation Fund plays a unique and essential role in advancing high-impact, early-stage research. By supporting pioneering projects and enabling collaboration between leading clinicians and scientists, it helps to address some of […]
In 2025, TANGO2UK established its Patient Participation Group (PPG)—a significant step forward in ensuring that the voices of patients and families are central to everything we do. Two meetings have been held to date, bringing together members of our community to begin shaping a more inclusive, informed, and collaborative approach to our work. The PPG […]
In 2026, TANGO2UK engaged with the British Paediatric Neurology Association (BPNA) Annual Conference, a key event in the paediatric neurology calendar. Held as a hybrid event in Glasgow and online, the three-day conference brought together clinicians, researchers, and professionals from across the UK and internationally . The conference provides an important platform for sharing the […]
We are delighted to recognise the outstanding contribution of Dr Seenivasan, whose recent work has helped shine a light on the TANGO2 journey for children in the UK. Her poster and abstract, presented at the Paediatric Neurology Conference in Glasgow, brought valuable attention to the condition and the experiences of affected families. This kind of […]
Our recent Whitemoor Lakes Family Weekend provided a truly special opportunity for families to come together, connect, and create lasting memories in a supportive and understanding environment. Bringing together children, siblings, and parents affected by TANGO2, the weekend offered a wide range of activities including archery, animal handling, arts and crafts, and a memorable campfire […]
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