Improving the lives of those affected byTango2 disorder in the UK
Improving the lives of those affected byTango2 disorder in the UK
Welcome
We are a small UK based charity looking to work with individuals and families affected by TANGO2 deficiency disorder and support clinicians who have patients with it.
TANGO2 is a rare genetic metabolic disorder affecting children from birth and causing long term health problems.
Our Mission
01. Awareness
With only a handful of UK children diagnosed with TANGO2 out of potentially thousands living with it worldwide, we need to promote clinical awareness so children can be recognized earlier and reduce the risk of metabolic crisis…
Read More
02. Support
The diagnosis of TANGO2 can come out of the blue, alongside a serious hospital admission or after years of unexplained symptoms. Families are often left isolated after such a diagnosis with minimal clinical information…
Read More
03. Research
With any rare disease research is key to understanding and therefore helping affected individuals. Our end goal of course is find a cure for TANGO2 deficiency disorder and reduce the impact it has on children/ adults…
Read MoreLatest news
Tango2UK is now live on social media
You can find us and keep in touch on Facebook and LinkedIn. Please follow and [...]
Read more
Thank you to our recent fundraisers!
Recent fundraisers have included a local T2UK launch party in Leamington, a huge sponsored walk, [...]
Read more
TANGO2 registered on key Genetic Panels
TANGO2 Deficiency Disorder can now be identified through an increased number of genetic screening panels. [...]
Read more
TANGO2 Research Foundation family conference in Orlando
Phoebe (and family) and Sebby (and family) were privileged to attend the third TANGO2 Research [...]
Read more
Donate Now
Please consider supporting TANGO2 UK with a donation. Your money supports research, promoting awareness of TANGO2 deficiency disorder and enables the TANGO2 community to feel supported and less alone.